Things have been pretty quiet around here while I finish up a couple of manuscripts for publication. However, I did want to take a moment to express my sincere gratitude to the people who have translated my article (“Dear parents, you are being lied to”) into many different languages (including German, Spanish, Italian, Slovakian, Portuguese, and Croatian) over the last few months. I’m overwhelmed by the response it has gotten, and grateful to have heard from so many of you that you found it useful.
I have no idea at this point how many people have read it, but I am trying to keep a running list of the different places it’s been published. If anyone finds more examples, I’d appreciate it if you’d post them in the comments so I can add them to the list below!
I am currently working on both a fellowship and a manuscript, so instead of writing a longer piece here, I’m issuing everyone a challenge. I have seen it repeated multiple times throughout the comments here that there seems to be evidence “on both sides” of the vaccines issue, and therefore people should just “go with their gut.” I reject that approach as lazy (at best). Whether or not vaccines are safe and effective is an empirical question, and therefore it should be answerable with data.
If there is any theme to this blog, it would be: Not all evidence is equivalent, and it takes training and a willingness to admit to ignorance in order to be able to identify good evidence from bad evidence. So how can the average person begin to sort out which information is good, and which is bad? There are many approaches to this question, which I will be exploring further in the coming weeks. But the first one is to honestly take inventory of one’s own knowledge: do you actually understand this issue? Do you, for example understand how the immune system works? No? Then you’d better read more and learn more on the subject before wading into the debate.
A second important step is assessing other people’s knowledge on the subject. This can can be difficult as it’s awfully easy to sound “smart” on the internet. I want to simplify this step here by asking everyone (anti-vaccine, pro-vaccine, or “undecided”) a single question: What kind of evidence would change your mind on this issue? This question has come up several times in our discussions (most recently, I believe, in the comments of gewisn), and I think the answers are so revealing that I want to devote an entire post to it.
Please be as specific and honest as possible. Please define any jargon. If you are talking about specific studies, please cite them so everyone can read them. This comments section will be more heavily moderated than usual in order to keep the discussion on track. Comments that do not answer the question, or go off on tangents will be deleted (although I won’t ban you from discussions unless you violate my general commenting policy).
As we approach the end of what’s basically been “Vaccines Month” here on Violent Metaphors, I want to take a moment to sincerely thank all parents who have responsibly vaccinated their children. In particular, I want to acknowledge those parents who had concerns about vaccines, but took the time to educate themselves and trusted their brains instead of their fears. Not only are your children safer because of your decision, but you have also helped protect countless children (and adults) who you will never meet.
I also want to express my gratitude to everyone who has participated in the comments, and taken a moment to share these posts with others. You may have gotten into uncomfortable discussions because of it, but know that your collective efforts are far more meaningful than any single post we can write here. By taking a public stand against pseudoscience, you have given voice to the thoughts shared by the majority of people, who are far too often intimidated by the clamoring of the fearful minority.
This site has had quite a bit of traffic in the last month, and the ad revenue that such traffic has generated is therefore considerably greater. When that happens, I typically donate a chunk of the proceeds (above what is needed to run the site) to a charitable organization. Usually I give it to an animal rescue organization (a cause dear to my heart), but I thought that since the amount this time was likely to be more substantial, I’d ask you to vote on which charity you would like to support.
Here are the options that I’ve thought of (in no particular order). Please let me know your preference (as well as any concerns you might have about these particular charities) in the comments.
One of the biggest issues I’ve seen again and again in the comments sections of every vaccination article is a fundamental lack of understanding of how the immune system works. Many people talk vaguely of “toxins”, “pathogens” and “immunity”, but it’s clear that they have no idea exactly how this works. So I thought that I’d invite a regular commenter, Dr. Scott Nelson, to write an explanation. I think that Dr. Nelson, who teaches this subject in university courses, has done an excellent job of making a complex topic accessible to people who are not scientists or physicians. (Note that we have provided hyperlinked definitions of many of these terms from Wikipedia for convenience. Dr. Nelson and I have both reviewed them and agree that they’re accurate. If you would like additional information beyond what is provided here, we recommend consulting any basic major textbook).
If you are “doing your own research” on vaccines, I urge you to read all the way through the end, and then watch the video, which shows an animation of the processes that Dr. Nelson describes. Finally, because I think it’s important to illustrate the vast differences between the scientific explanation of how the immune system works, and the “alternative medical” explanation, I’ve included the homeopathic version at the end of the post. I encourage you to share your thoughts on which you find most compelling, and why. My comments following Dr. Nelson’s are in bold
A common thread through many anti-vaccine posts is fear about “all the stuff that you are jabbing into a kid”. I would like all the people who think this to perform a simple experiment. Take a piece of meat-any meat-make sure it’s fresh and smells good. Put it on the counter in a nice warm place-about body temperature-cover with a screen if you like. Let it be for three days and then look at it carefully, note all the different shapes and colors. If you know somebody with a microscope, scrape a bit of stuff off and look at it under a microscope. How many different things do you see now? Each spot, each color, each bug you see under a microscope represents something that the immune system is dealing with every second of everyday. After all-wasn’t it exposed to the exact same air that you’re breathing right now? Your body is that piece of meat-your immune system is what keeps it from rotting. Right now, our best estimates are that there are 10 microorganisms for every cell in your body. Your immune system “knows” them all and has responded in various ways, which science is currently exploring. Continue reading →
Last weekend I attended the Autism Trust’s Give Autism a Chance Summit. Billed as an “informative conference,” it actually felt like a Two Minutes Hate about the evils of science and medicine. Speakers harangued the audience about the evils of vaccination–including a bizarre show trial–and pushed snake oil on desperate parents. Some of the speakers touted services based on absurd, unproven theories; others lied shamelessly to the attendees. Although there were some positive messages on display, the conference focused on sowing fear and using it to move product.
Thanks to Jenny McCarthy and Megan of Living Whole for proving the point: anti-vaxers are lying to parents. Jenny McCarthy is in the news lately with an op-ed that starts with a whopper: “I am not ‘anti-vaccine.’” This is absolutely not true; McCarthy has worked hard for years to scare parents away from vaccinations. The root of her campaign is her insistence that vaccines cause autism, despite the conclusion of the community of experts that there is no evidence of such a link.
It’s absurd for her to claim now that she only wants “safe” vaccinations, since the dangers she complains about are primarily in her head. Vaccines, like any medicine, can’t ever be 100% safe, but they’re “among the most safe and effective public health interventions to prevent serious disease and death.” Science can’t make a vaccine “safer” if the problems she wants fixed don’t exist. It’s as if she was telling parents not to fly until Boeing finds a way to keep gremlins off their planes. They can’t do it because gremlins, like a vaccine-autism connection, don’t exist. Nevertheless McCarthy uses those false fears to drive a wedge between parents and their doctors, depressing vaccination rates while still shamelessly claiming she’s not “anti-vaccine.”
McCarthy has been lying for years about the dangers of vaccines. If the effect of those lies is to stop parents from vaccinating, then yes, she is an anti-vaxer. But she’s not stupid; she knows that people give more credibility to voices that claim to be “in the middle” or “just asking questions.” So she lies. She claims that she’s not an anti-vaxer, even though her goal and effect is to reduce childhood vaccinations, because she’s a more credible and effective anti-vaxer if she can persuade parents she’s just asking questions about the safety of the vaccination schedule. Since those questions have long since been answered, the only reason she’s still asking them is to spread fear, uncertainty and doubt about some of the safest medical products available, her pretense at a balanced stance is false and misleading.
It’s common for anti-vaxers to lie to enhance their credibility. It’s one of the only ways the movement can make progress, since the community of experts disagrees with their conclusions so fervently. One way is to claim false equivalence, as McCarthy does. But we recently saw a good example of an even bolder lie, courtesy of Megan at Living Whole.
My most recent post (“Dear parents, you are being lied to”) has sparked a very lively discussion. I encourage you to continue to share your thoughts on it, but I also want to follow up by asking for your reactions to one comment that I found particularly interesting. (I’ve edited it a bit for brevity)
As a pediatrician who’s spent extensive time working in the US and overseas and has seen children die from EVERY disease (except small pox) for which there is a vaccine I am appalled at the lack of education by the general public on the vaccine issue. This is my rant: I had two unvaccinated children in the US die from whooping cough, one from tetanus, and 2 from meningitis in the past few years. Perhaps this reflects our country’s generally poor understanding of math and science in general. A recent large study in the US showed that no matter how scientists try to educate US parents about disease and disease prevention, whether it is vaccines or hand washing, parents simply cannot follow the logic.
It’s devastating to see children die from preventable disease and despicable that it is happening here. I would like to know why those whose children end up in the PICU with tetanus or whooping cough now trust us to save the life of their child? Why do you run to a doctor when you are terrified your child has tetanus after refusing to vaccinate? Why am I now competent to save your child’s life when they have meningitis or epiglottis, but I wasn’t competent enough to keep them from getting sick? If there was no medical help for your unvaccinated child if they acquired a vaccine preventable illness would you think about vaccinating? If you’re not willing to run to your anti-vaccine friend, treat your child with advice from non-scientific sites on the internet, go to your chiropractor, or your holistic healer with your dying child perhaps you shouldn’t be taking their advice about vaccines. —Anonymous
To those of you who simply don’t trust the medical community’s use of vaccines, I am curious what you make of this physician’s point. Given your reservations about vaccines, do you trust an MD to treat yourself or your children for any medical issues at all? If so, why do you trust his/her education and experience on some points but not others?
I invite anyone, pro- or anti-vax, to share your thoughts on this. Please respect each other by following the commenting policies (and feel free to alert me if I miss a comment in violation of them).
A while back a friend asked me to help with a difficult conversation. Someone she cared about was expecting her first child, and had decided not to vaccinate her baby. My friend desperately wanted to change the mother’s mind to protect that child. But she wasn’t sure how to proceed. She had the facts on vaccines, and knew that refusing immunizations was a dangerous and irresponsible decision. But she wasn’t sure how to convince her friend of that without jeopardizing their relationship. There are some excellentresources for health care providers having this conversation with patients. But there wasn’t much that applied to her particular situation. So she asked me whether my experience as a negotiator gave me any insights that might help her plan for what was sure to be a difficult conversation.
As it happens, I had been thinking about the same thing. I’m particularly interested in how laypeople should approach a conversation like this, since laypeople can be much more persuasive than the family physician. In the real world, our family and trusted friends very often carry more weight than experts. The giant but useless homeopathy industry would collapse otherwise. So when you hear that one of your friends or relatives doesn’t plan to vaccinate, you have the opportunity for a conversation that could potentially change their mind and save that child from terrible harm.
Unfortunately, too many people approach that conversation timidly, without a solid strategy for persuading their friend. That makes it hard to respond when things take an unexpected twist, such as your friend spouting off antivaxer talking points you hadn’t considered. Other people are too aggressive, treating the conversation like the comments section of a blog post. That kind of combative and confrontational dialog can feel good, but it doesn’t accomplish much in the real world.
So what does a strategy for an effective, persuasive conversation look like? There is a world of advice we could give about that conversation. We’ve distilled it into four basic points: be sincere, ask questions, be sympathetic, and provide information.
After the fold, we’ll go into some specific thoughts about each one. We want to stress, though, that this is just a framework. The conversation itself will be different every time. We want to know more about your conversations. If you’ve tried to talk someone into getting a child (or themself) immunized, please share your story in the comments section. Continue reading →
This afternoon Ms. Couric’s show “Katie” featured the “HPV Vaccine Controversy” as part of its “Big Conversation”. The segment focused mainly on the vaccine Gardasil, which is administered to girls and boys around the age of 11, in an effort to immunize them against HPV before they become sexually active and likely to contract the virus.
Although Couric herself claims that she is personally “not anti-vaccine”, her show was extremely biased against the scientific consensus. She kept referring to the vaccine as “controversial” when there are no legitimate scientific studies showing it to be dangerous. I’m used to getting upset at journalists who give false equivalency between the scientific consensus on an issue on the one hand and a fringe belief on the other. But this was beyond the pale; Couric’s program didn’t even aspire to that “balance”.